I have three children- 2 sons and 1 daughter.One of my sons, my youngest, Micah, has Cystic Fibrosis. If you have never heard of Cystic Fibrosis, I would not be surprised. I’ll give you a quick summary. Here goes:
We all have mucous in our bodies. “Normal” bodies have mucous that is thin and slippery and is throughout our bodies. A child with Cystic Fibrosis (CF) has mucous in his/her body that is very thick and sticky. When the mucous is thick and sticky, it clogs organs such as the lungs, the pancreas, the liver. A child sweats profusely, cannot digest food properly, does not usually gain weight well , gets lung infections, pneumonia and the like often . The mucous, because it sticks to the lungs during infection causes the lungs to scar and the child or young adult to lose lung function. Some people with CF get lung transplants because of this. Some are too sick to transplant and some don’t want transplants. There is no cure as yet, although the medication breakthroughs have been tremendous of late. For many children and young adults (and occasionally old guys)- well, they die young.
So, when Micah was diagnosed with CF at about 9 weeks of age, I had a lot to learn quickly. My schedule was busy (remember, I had two older kids). So, Micah would wake very early in the morning ready to eat, but he had to have a breathing treatment first. Next, chest physiotherapy (CPT) (clapping his back, sides and chest 3-5 minutes a side) and then I had to make sure he got his applesauce (which hid digestive enzymes that were bitter tasting) before I gave him his bottle. His formula had been changed many times, but we finally became a test family for Good Start Formula before it went on the market in 1989 or so. While I was taking care of him, I was also getting breakfast for David and Mandi . Mandi was about 12 or so , so she could get her ownself ready for school. David watched “Zoobilee Zoo.” Okay. After breakfast was naptime for him and an hour or so later, I’d start all over again. Most of the time, he had breathing treatments three times a day, but if he was sick, it could be as often as every two or three hours.
Well, fast forward a few years. Micah is almost 26 years old! By all accounts, he should have died before he was one year old. God has had His hand on this boy all his life. He has lived 25 years longer than anyone thought he would (except us). The other day, while doing a breathing treatment, he coughed up some blood – not a good sign, we all thought. He wisely called the doctor and went in for a CT scan of his chest.
Today, I received a call from him saying the doctor called and said he had a subtle pneumonia going on- so subtle that it was not seen on xray. I am so grateful God chose to bless Micah with that blood. No, I’m not some kind of crack pot. But, I know my son. Had blood not been a factor, Micah, as diligent as he is with his health, might have missed that he was not well and just carried on until the pneumonia got worse. As a result, he has only home IV’s to do instead of a 14 day hospital stay.
Isn’t it funny how God chooses to get our attention? Thanks God!